‘Having a child with a rare, complex condition is very isolating,’ says Kris Pierce whose son Will was finally diagnosed with the rare genetic disease SCN2A-related disorder when he was 14. “We can invest millions of dollars but we also need to provide families and healthcare professionals with psychosocial support.”

The establishment of Australia’s largest computational biology team, part of Luminesce Alliance Data Enabling Platform, will mean that more precisely targeted cancer treatments can help children like Scout.

Learn about the challenges and achievements of our families and researchers and how we are driving meaningful change for children facing cancer, rare diseases, and neurological conditions.