Luminesce Alliance

Our outstanding researchers and clinicians are increasing capacity for rare disease research, innovation and equitable access to health system support for children with rare diseases and their families.

‘Having a child with a rare, complex condition is very isolating,’ says Kris Pierce whose son Will was finally diagnosed with the rare genetic disease SCN2A-related disorder when he was 14. “We can invest millions of dollars but we also need to provide families and healthcare professionals with psychosocial support.”

Kris and Will's story

Grace is a fun-loving, kind and inquisitive eight-year-old girl who lives with ADCY5-related movement disorder syndrome, an ultra-rare genetic condition. Hear from Grace’s mother Emma and A/Prof Wendy Gold about how the Luminesce Alliance Functional Genomics Platform is supporting discovery to improve Grace’s function.

Emma and Grace's story

The establishment of Australia’s largest computational biology team, part of Luminesce Alliance Data Enabling Platform, will mean that more precisely targeted cancer treatments can help children like Scout.

How computational biology helps children like Scout

Children’s Precision Medicine Research

Researchers

We work with researchers and clinicians to find answers for children living with cancers, rare genetic diseases and neurological disorders.

Families

Find out how precision medicine can help children with cancers, neurological disorders and rare diseases.

Collaboration

Our project teams work in a highly networked environment extending to collaboration with more than 50 organisations. For more information view the opportunities below and visit collaboration opportunties.

Our research is helping to find answers

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Luminesce Alliance brings together world-leading paediatric precision medicine researchers and clinicians to help find answers for children living with cancers, rare genetic diseases and neurological disorders.

Psychosocial Enabling Platform

Health Systems Implementation and Economics

THINK Drug Discovery

Functional Genomics Research Pipeline

Translational Tumour Biology

Kids Advanced Therapeutics

Kids Link

Collaboration Opportunities

INFORM2 (INdividualized Therapy for Relapsed Malignancies in Childhood)

Advanced Clinical Data Analytics

News and events

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New tools to help diagnose cancers and rare genetic diseases in children

Most people take it for granted that, should they or their child develop a medical condition, they will be quickly and accurately diagnosed – the first step to getting effective treatment. But that is not always possible, particularly in the case of childhood cancers and other rare genetic diseases. To help address this shortcoming, lead

More than 200 publications!

Did you know that childhood cancers are considered to be rare diseases?

Luminesce Alliance - We can invest millions of dollars into cures, but we also need to support families and healthcare professionals with psychosocial support Image

We can invest millions of dollars into cures, but we also need to support families and healthcare professionals with psychosocial support

Take your research from the lab to real life - apply now for 2025 commercialisation programs

Luminesce Alliance welcomes cancer precision medicine funding boost for ZERO

Our partners and collaborators

Luminesce Alliance – Innovation for Children’s Health is a not-for-profit cooperative joint venture established with the support of the NSW Government to coordinate and integrate paediatric research.